Facial Palsy UK is interested in sharing your personal stories. It will help our charity raise awareness of facial palsy and its many different causes.
Why tell your story?
Some people with facial palsy can feel deeply isolated because of their inability to smile, to join in the laughter, to show their feelings. Sharing your story on our website will be a huge support for others living with facial palsy: they will realise that they are not alone and that many other people experience, and can understand, what they are going through. Even if you have now recovered from Bell’s palsy, for example, we are still keen to share your story because it gives hope to others recently diagnosed.
How to tell your story
As a guideline, you could try and include all or some of the following information when you write your personal story:
- Your name (we will not publish your real name if you don’t wish us to).
- Your age, or age range
- The area you live in.
- Your occupation/hobbies.
- How facial palsy changed your life.
- Your treatment or surgery journey. Please note we may decline to share stories about treatments or surgeries not backed by good medical evidence to treat facial palsy. This would be at the discretion of our medical experts.
- Any advice you have for other patients, for the medical profession and for the general public.
- What your hopes are for the future – be it treatments, changing attitudes for the better, etc.
Important note: We are unable to name health professionals or hospitals where you have received treatment in your personal story on our website. For the website, please refer to someone by their job title, e.g. plastic surgeon. If you want to mention a hospital please write, for example, ‘I was treated at a hospital in the east of England’. If you are writing your story to be used in the media then you can name health professionals and hospitals.
Ideally, your story shouldn’t be longer than 1200 words but it doesn’t really matter if it is a bit longer or shorter.
How to get started
Please complete our Case Study Request form. Before making a decision about media we recommend you read our Media Volunteer information below.
Send your personal story and photos (if you want to include them) to firstname.lastname@example.org.
We will read your story and suggest any edits if required and then return to you for approval before placing it on our website.
What’s involved in becoming a media volunteer
Occasionally, journalists contact us to ask for media volunteers who would agree to be interviewed about their experience of facial palsy. Journalists writing for magazines or newspapers will want to speak to you and write their own version of your story which will then be checked with you. They would be unlikely to use your story without good, clear photographs.
Facial Palsy UK media volunteers could be asked to appear on TV news or features, be interviewed on the radio, or quoted in a newspaper or a magazine article. We take confidentiality very seriously, and we will never send your details to a journalist without your permission.
Media interviews might come up sporadically throughout the year so don’t be surprised if you don’t hear from our team right away.
Please read our information about things to consider before becoming a Media Volunteer here.
Last reviewed: 18-04-2020 || Next review due: 07-03-2023