December Newsletter

December 8, 2018

**Subscribers to our newsletter: Apologies if you have received an email saying you have updated your details on our website. This was sent incorrectly. We have been transferring everything to a new system which incorrectly triggered this email. Please ignore it.**

It has been a long time since the last newsletter and you are probably wondering where we have been.

In May the new data protection rules (GDPR) came into place and we needed to be sure that we got this right. This turned out to be a massive job and you have all been very supportive of this – thank you for your patience. We would like to take this opportunity to remind you that you can view our Privacy Policy here.

We have not held a large annual event this autumn as we have done previously. We are endeavouring to plan a social event in 2019/20. Our Annual Report will be published in early 2019.

A warm welcome to all of the new members of Facial Palsy UK’s growing community, we are glad you found us.  If you are newly diagnosed please make sure you look at the self-help videos on our website which have lots of useful information.

Facial Palsy Awareness Week 1 – 7 March 2019

Our awareness week takes place in the first week of March 2019. We need your help to raise as much awareness as possible about facial palsy.

Our key messages to share for the week are:

  • The difficulties people have accessing health care
  • The psychological impact of facial palsy
  • What it is like living with facial palsy

There’s more information on our website explaining how you can get involved. Find out more.

Important Survey

We are running a UK survey to find out how people with facial palsy access health care for the condition via the NHS and the impact of living with facial palsy. Please follow the link to make your opinion count. Please note this is only relevant to people who can access NHS health care.

Some of the statistics from this will be used for our Awareness week publicity. Take the Survey

Information

We have been busy gathering information from all authorities responsible for funding health care in the UK about how they make referrals for facial therapy. We will be collating this information to report on during Facial Palsy Awareness Week.

NICE Guidelines – There is an updated version of the NICE clinical knowledge summary for Bell’s palsy which aims to support primary care practitioners to help their patients. Read Here

This may not include things that you have found useful because the team look at the good quality evidence available.

Support

A 14 minute video with English subtitles explaining facial palsy and the stages of recovery has been produced with the support of the QVH Charity. We are very grateful for their support. Watch now

In addition to our face to face support groups we now have Facebook support groups for people in:

When Teddy Lost His Smile – Our children’s book helps normalise facial palsy and reduces isolation. Find out more

Volunteers & Fundraisers

Campania Wines Event

Campania Wines Event

None of the work that we do would happen without you. Thank you to all of our volunteers who have held group meetings, helped with media, raised awareness and given feedback on new information. Thank you also to everyone who has fundraised and donated.

Pictured are Mandy and Trina who manned a stall last weekend at a Wine Fair fundraiser organised by Campania Wines.

If you are in the Lincolnshire area, Darcy has organised Family Bingo fundraiser Sunday 9th December at Sutton St James Village Hall. Eyes down at 2pm. Postcode PE12 0EF.

Research

The results of our 2017 research priorities exercise have been published in the Journal of Plastic, Reconstructive & Aesthetic Surgery. Read Here

Help us

Raise Funds Online This Christmas

With Give as you Live and Amazon Smile you can raise funds for us at no cost to you. Find out more

Join our Lottery

Play our Weather Lottery to give you the chance of winning up to £25,000 and provide a regular income for us enabling us to plan better. Play here.

Browse our Shop

LEGO Bauble

LEGO Bauble

One More Brick who make custom LEGO models have kindly created this LEGO Christmas Bauble for us. They are available in our online shop.

 

WISHING YOU A PEACEFUL CHRISTMAS AND A HAPPY NEW YEAR

Thank you as always for your support. We will be in touch in the New Year with more updates about Facial Palsy Awareness Week.

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