Facial Palsy UK Community

Join Our Community

Our growing community is made up of people with facial palsy, parents, family members, friends and health professionals. Our community are at the heart of everything we do.

There is no fee to join our facial palsy community.

Why Sign Up?

  • Receive e-newsletters and e-mailings to keep you up to date with events and opportunities relevant to you.
  • Access to local support services
  • A chance to have your say in our surveys, polls and studies.
  • Find out about volunteer roles available.
  • Be part of the UK’s only charity dedicated to all those affected by facial palsy.

There are no obligations – this is your community, be a part of it!

To sign up, just complete the form below


I would like to receive...

Subscribe to our e-mail news – may include snippets of all news such as events, information, support groups, research, fundraising & volunteering (there is an unsubscribe option in every e-newsletter so you can change these settings at any time)

YesNo

Any future annual magazines/booklets we produce by post (we are not currently producing printed newsletters but this is something we are considering once a year). Please note this will be UK only

YesNo

Information about becoming a Facial Palsy UK volunteer

YesNo

Information about fundraising for Facial Palsy UK

YesNo

An invitation to any Facial Palsy UK Local support groups close to me

YesNo

Invitations to participate in research relevant to me

YesNo

All About You...

Please select the option(s) below that best describe your connection to Facial Palsy UK

I am a parent/carer of a child under 18 with facial palsy (Select cause below)I was born with facial palsy (Select cause below)I am an adult with acquired facial paralysis (Select cause below)I am an adult who acquired facial paralysis during childhood (Select cause below)I have some other personal connection to facial palsy e.g. partner, grandparent, sibling, friend of someone with facial palsyI am a health professional and/or researcherNone of the above








 

Data Protection Statement

Facial Palsy UK is committed to data protection and will never pass on your details to any third party without your consent.

Why we need your data

We need to know your personal data in order to provide you with relevant information based on your choices. We don’t collect data from you that we do not need. Some questions are asked to ensure that we are reaching all sectors of the community.

What we do with it

We may use your data in the following ways:

  • To provide us with statistics about the facial palsy community
  • To advertise relevant events and opportunities to you directly, such as conferences, family days, support groups, etc.
  • To promote events and opportunities on behalf of other organisations such as a research opportunity. We will NEVER pass your details on.

What happens to your data when you sign up to join our community?

  • Your data is stored in our secure website database and then transferred to our Harlequin database which is on an internal secure server. The data stored on the website is deleted once this transfer is complete. It may also be sent to Mailchimp which is a service we use for e-newsletters and e-mailings. These systems are secure and comply with all UK and EU data protection laws.
  • We will only contact you in the ways you’ve indicated above and you can unsubscribe from our e-mailings at any time using the ‘Unsubscribe’ button at the bottom of every mailing. You can also email data@facialpalsy.org.uk or telephone 0300 030 9333 at any time to request your information be changed or deleted.
  • We won’t trade or sell your data to anyone else ever. We won’t pass on your data to anyone else without your explicit consent, for example, you may wish to be put in touch with a local person affected by facial palsy or you may wish us to write a letter to advocate on your behalf to another organisation such as your GP surgery. We will always seek your consent for such activities. We might sometimes need to share data with a third party, for example if we send out a large mailing, the mailing house may need your name and postal address (for those who opt in to postal communications). We will only work with companies that abide by the same laws, and privacy and care of information will be a vital condition of any contract entered into with third parties.

How long do we keep it?

We have a Data Protection regime in place to oversee the effective and secure processing of your personal data. The information given by you on this form will be kept by us until you notify us you no longer wish to receive this information OR for those who opted into marketing communications we will remove records where a communication has either not been received, responded to or opened after six years.

What are your rights?

If at any time you wish to raise a complaint on how we have handled personal data, you can contact our Privacy Officer who will investigate the matter. If you are not satisfied with our response or believe we are processing your personal data not in accordance with the law you can complain to the Information Commissioner’s Office (ICO). Our Privacy Officer is Karen Johnson and you can contact them at data@facialpalsy.org.uk or 0300 030 9333.

There is a lot more information in our full Privacy Policy which can be accessed here.

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Last reviewed: 30-04-2018    ||    Next review due: 30-04-2021