Facial Palsy UK’s Family Days are a relaxing and fun day for children affected by facial palsy, their siblings and parental guardians. The aim of these days is to reduce isolation for children affected by facial palsy and their parents.
National Space Centre Family Day – Saturday 22 June 2019
We are heading to the National Space Centre for an exciting day. There are six interactive galleries, the UK’s largest planetarium and the iconic 42m Rocket Tower. There’s lots of interactive and fun experiences for all ages.
Plans for this Family Day are:
- Meet at the National Space Centre, Exploration Drive, Leicester, LE4 5NS, at approximately 10:30 – 11am on Saturday 22 June 2019.
- We will pay the entrance fee for your family and for the Planetarium Show
- Lunch is not included so please bring some with you or buy on site. If the cost of lunch will prevent you from attending please get in touch so we can help.
More information will be sent to attendees nearer the time. Please click the link below to book your place.
Or for more information please email us on firstname.lastname@example.org or telephone Karen Johnson on 0300 030 9333.
Please note that our Sussex Family Day originally planned for May had to be postponed due to lack of interest.
Previous Family Days
How do Family Days help?
Some children with facial palsy may feel isolated because it’s unlikely they will have met another child affected by the condition. They may be the only child in their school with a different smile and this can at times feel quite lonely. Meeting another child who also has the condition can really improve self-esteem.
When you are the person with facial palsy, the only image you have of yourself is your mirror image or what you see in photographs or video. You don’t see what other people see, your animated face with your whole personality shining through. People will often say to someone with facial palsy that they don’t really notice it but it’s only when you meet another person with facial palsy that you begin to understand why this is actually true. Meeting others with the condition really helps to build confidence.
On meeting other children with facial palsy for the first time, a 9 year old girl said:
Thank you, this was the best day of my life.
Our family days are also an opportunity for parents to meet other parents and benefit from mutual support. They may wish to discuss different surgeries, school issues or simply make new friends who share experiences. We also include siblings because often when a child has a medical condition all the family are affected because there will be hospital visits and other pressures.
FPUK Associated Articles:
Externally Linked Articles:
Private Facebook support group for parents and carers of children with facial palsy, operated by Facial Palsy UK.
Last reviewed: 04-04-2019 || Next review due: 13-05-2019