December 6, 2017
Our recent AGM at Langley College, Berkshire was a celebration of the work of the charity.
During the business section, charity founders Charles Nduka and Vanessa Venables reflected on the work of Facial Palsy UK from its small beginnings and looked at the increase in activity in all areas of our work. As an example of this, the website in the first year attracted 18,000 unique visitors. Last year there were 263,311 visitors to our website. The full video is shown below:
Deputy CEO Karen Johnson presented the financial reports and accounts for Facial Palsy UK to the end of the financial year (June 2017). These are now available to download here. The full video of Karen’s presentation is here:
Claire Hamlet from the Centre for Appearance Research explained the process behind this year’s Delphi study to ascertain the Top 10 priorities for facial palsy research. The full video of Claire’s presentation is here:
Singer/songwriter James Parkin told his story and performed some of his songs including “My Cure” which gave a very positive message about his recovery from salivary gland cancer to date. The full video of James’ presentation including his song performances is here:
Much of our work relies on volunteers and the AGM is the perfect opportunity to say thank you to all of you who help in so many ways. Without volunteers who give up so much of their time; our support groups, events, social-media, fundraising and befriending would not be possible. Some special awards were presented to children and adults for the contribution that they had made throughout the year. We were also presented with a cheque from the Charity Fest team who raised £3,662.92 for the charity this summer. The video of the special recognition awards is shown below:
Our support groups continue to attract people from around the UK. For many people the first time at a support group is an incredible experience. It is often the first chance to meet someone else with facial palsy. At the AGM, Vanessa Venables explained how the East Grinstead support group has changed from its beginnings 5 years ago. She described people at the early groups being unhappy and angry about the management of their facial palsy and wanting more information, but this helped them to get involved with the charity and to make a positive change. Vanessa said that there is a different feeling within the group now although members continue to be very supportive of one another; there are new members and the group is very fluid. More people are able to access help and information because of the work of the charity.
The support group listing for 2018 is still being worked on but this link will be updated as new dates are confirmed: https://www.facialpalsy.org.uk/support/local-groups/
We also made a Special Contribution Award to Vanessa Venables for her continued dedication to the charity she co-founded. This award was presented by Bethan Robertson-Smith, one of the first volunteers of the new charity when we launched in 2012. Video is shown below:
A big thank you to all of the volunteers who helped at the event, particularly Sarah James for organising the venue and catering. Finally thank you to everyone who came and made it such a special day. Here are a selection of photos from the AGM.
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