April 3, 2018
During Facial Palsy Awareness Week our media volunteers have been helping us raise awareness of facial palsy in the press and media. We also have some new stories on our website. We know people find the stories helpful and we thank everyone who has participated.
Cate’s Melkerrson-Rosenthal syndrome story was shared in:
Sophie’s Bell’s palsy story was shared in:
Deborah’s Ramsay Hunt syndrome story about delayed diagnosis:
Steve’s Ramsay Hunt syndrome story about delayed diagnosis:
Lisa’s Ramsay Hunt syndrome story about lack of follow up care:
Darcy’s family bingo fundraiser:
In conjunction with the Queen Victoria Hospital and Cancer Research UK James Parkin discussed surgery following facial palsy after cancer:
BBC Radio Humberside interview with Lisa Beardsley and Paolo Matteucci – 6 March 2018
Wycombe Sound interview with Matt Carney – 8 March 2018 (17 minutes in)
BBC Look North – East Yorkshire and Lincolnshire interview with Lisa Beardsley – 6 March 2018
Matt’s story – Matt was misdiagnosed with Bell’s palsy when in fact he had Ramsay Hunt syndrome.
Karla’s story – Karla gives hope to those newly diagnosed with her seven week Bell’s palsy recovery story.
Heidi’s story – Heidi has had five episodes of Bell’s palsy, she tells how she celebrates every little improvement.
Lisa’s story – Lisa has had a difficult journey and is still waiting to access treatment for Ramsay Hunt syndrome.
Deborah’s story – Deborah describes Ramsay Hunt syndrome as her breakdown in her face.
Claudine’s story – Doctors struggled to diagnose Claudine with Ramsay Hunt syndrome due to the absence of a rash.
Cate’s story – It took years for Cate to discover that Melkersson-Rosenthal syndrome was the cause of her childhood cold sores.
Felicity’s story – A large haemangioma caused Felicity’s facial palsy, she shares some good advice for people who are being bullied.
What you need to know about Bell’s palsy – Patient website
My facial palsy story by David Coles
Facial palsy in the UK – are you aware? – Royal Society for the encouragement of Arts, Manufactures and Commerce