Un-Masking Moebius Syndrome and Facial Palsy

June 19, 2014

The Moebius Research Trust will be hosting the first Moebius Syndrome and Facial Palsy Conference in the UK this coming autumn. The conference is open to anyone who has been affected by either condition and will provide individuals with the opportunity to engage with experts and other families in order to learn from one another as well as build a network of contacts for the future. There will also be a range of consultants, therapists and care providers with specialist knowledge on new treatments that are now available.

Moebius syndrome is a rare neurological disorder, that is present at birth and primarily affects the muscles that control facial expression and eye movement. People born with Moebius syndrome are unable to smile, frown, blink their eyes, suck, or raise their eyebrows. Other cranial nerves may be affected causing other physical problems such as clubfoot; mouth, tongue and jaw deformities; and respiratory illnesses.

This conference is open to anyone who is affected by either Moebius Syndrome or Facial palsy and everyone is welcome from individuals with either condition to families or professionals.

The event will take place this coming autumn at:

The Education Centre,
Alder Hey Hospital,
Eaton Road,
Liverpool,
L12 2AP.

On Saturday 25th October 2014, 9am until 5pm.

To request a booking form please email ceri@moebiusresearchtrust.org or call Dionne on 01875 819822. Please note admission includes refreshments throughout the day: adults £25 per person and children £10 per person.

Article by: Sara-Anne Mills-Bricknell (PR Volunteer)