I’m Scott, 31, from Neath in South Wales. In 2013, I required brain surgery to remove a tumour. Unfortunately, complications presented in the form of unilateral facial paralysis, among other issues. I don’t recall being told that facial palsy could occur during the surgery and so I was very surprised when I woke up to learn that I had facial palsy. I wasn’t provided with any information about facial palsy and its impact from anybody, apart from the nature of the injury from my neurosurgeon. They told me my cranial nerves were intact and that movement would come back on its own. It didn’t, and so they referred me to a plastic surgeon some 12-24 months later.
Having a supportive family and good friends has really helped me come to terms with my different look. Additionally, plastic surgeons who care for me have endeavoured to create movement and symmetry through face reanimation surgery. I’ve had two unsuccessful surgeries, and I’m due to go back for another one to try again. The long-term paralysis has unravelled its own subsequent problems such as issues with my eye, owing to a lack of ability to blink. My eye has dried out over the years and I have had a PLATINUM weight put in the lid to help facilitate a blink. I recently underwent a tarsorrhaphy, where they pinched the corners of my eye together, to further protect the cornea after having an ulcer on my eye and now a corneal opacity which has affected the vision in my left eye.
Eating and drinking can be problematic, particularly drinking from an open cup. Articulating words can be challenging but this is rare, people sometimes ask me to repeat words. In terms of work, I was a carpenter therefore dust would be an issue for my eye, but with other issues, I did not go back to carpentry. My social interaction has changed from being somebody extroverted to introverted, more so in larger crowds. I’m slightly conscious when laughing around people and sometimes cover my mouth, as I’m very aware that only half of it opens.
The psychological effects have been astronomical. Depression for knowing how different I look and for things not working as they should. Very paranoid that people would look. And generally deflated with a lack of self-esteem. However, I try to stay positive and grateful.
Disclaimer: Please note that views expressed are person’s own and should not be considered a recommendation of particular medical treatments, therapies or surgeries. We would always advise you seek advice from a health professional with experience in facial palsy who can assess your individual needs.
Last reviewed: 08-03-2024 || Next review due: 08-03-2027