Facial Palsy Awareness Week 1-7 March 2019

Facial Palsy Awareness Week takes place on 1-7 March 2019. We need your help to raise as much awareness as possible about facial palsy.

Face My Day – our theme for 2019

Key messages to share during Facial Palsy Awareness Week are:

  • The difficulties people have accessing health care
  • The psychological impact of facial palsy
  • What it is like living with facial palsy

Quotes needed

We are looking for quotes to tweet during Facial Palsy Awareness Week from real life experiences. If you would like to provide a quote we can use please email media@facialpalsy.org.uk stating whether we can use your real name and where you are from. If you would prefer to be anonymous please make sure you tell us. We may shorten your quote if it’s too long for social media but we won’t take it out of context.

Here are some ideas for topics:

  • Access to health care, e.g. length of time to get treatment, still waiting for treatment, etc.
  • The psychological impact of facial palsy, e.g. dealing with stares and comments.
  • The social impact of facial palsy, e.g. how your social life is affected as a result of the condition.
  • The physical effects of facial palsy, e.g. eating, drinking, difficulty smiling, synkinesis, inability to close the eye(s).
  • The difficulties with personal care when you have facial palsy, e.g. brushing teeth, washing hair, etc.
  • Problems experienced in the workplace, e.g. pain, dry eye, lack of support.
  • School issues, e.g. bullying, dealing with questions.
  • How greater awareness could make a difference to your life.
  • Any positive comments about how others have made living with facial palsy easier such as friends, family, employer, support group members or health care professionals. Please note we cannot specifically name individuals.

Case studies

We are looking for more people who are willing to share their stories in the press, magazines, on television or radio, during the week. Please download a Case Study Request and return to us detailing the mediums you would be happy to appear in. It’s okay to send us a photo of your completed form. If you’ve already sent us a form you don’t need to do it again. Please also send us a summary of your story and photographs you are happy for us to use. We will consider everyone for opportunities that may arise.

Fundraising

Our specific funding for our Support Services ran out in 2018 and we need your help to raise more funds during Facial Palsy Awareness Week so we can continue to support people at the level we do now. The number of direct support enquiries we received in 2017/18 has increased by 41% compared to the previous charity year.

Please contact us if you have any questions – fundraising@facialpalsy.org.uk

Thank you for your support!

Posters and downloads

Download links

Code 001 – Fundraising event poster (A4), Fundraising event poster (A3)

Code 002 – Emotional effects poster (A4), Emotional effects poster (A3)

Code 003 – Social effects poster (A4), Social effects poster (A3)

 

If you have image editing software you may want to overlay your own images with our Facial Palsy Awareness Week stamp. Download the purple one (shown left). A white one is available on request.

 

 

Facial Palsy Awareness Week History

Facial Palsy Awareness Week first launched in March 2015, at the suggestion of volunteer Kay Turner.

Watch the Ben Lomond Challenge undertaken by 120 people from Scotland for Facial Palsy Awareness Week 2016:

Previous campaigns:

#inyourface – We pushed the message that this condition affects function of the face and should not be dismissed as cosmetic. It’s about what is happening ‘in’ your face, which is not always what others can see. People painted numbers on their faces that represented facts about their condition and took selfies with posters explaining the number. We raised awareness in the media and published the results of a comprehensive survey about Ramsay Hunt syndrome.

#sharemyhappy – People raised awareness of the fact that happiness isn’t always shown on your face. They also thanked those that support us during our facial palsy journeys.

#facemyday – Friends and family joined in by shaving half their beard off or wearing half-makeup during the week. They shared selfies on social media to raise awareness. The nail art community painted fingernails to raise awareness and shared on Instagram.

#straightface – we highlighted what so many take for granted, the ability to laugh unreservedly and to express ourselves using our faces.

#faceanewday – people took part in dawn walks to raise raise awareness of facial palsy and literally ‘face a new day’.

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Last reviewed: 05-12-2018    ||    Next review due: 28-02-2019