There are over 50 causes of facial palsy and it can affect anyone at any age. Raising awareness for all ages is an ongoing task. In March 2019 we published shocking results of a survey of 421 adults in the UK with facial palsy which detailed the misery many patients experience trying to access health care for their medical condition. We need NHS funders and decision makers to Face UP! to the consequences of poor care for this patient group, i.e. delayed diagnosis, misdiagnosis, permanent facial disability and psychological impact.
How can you help?
- Every penny counts – can you make a small regular donation to Facial Palsy UK? Donation link
- Face UP! and Speak out – give a talk about facial palsy to someone new, e.g. your local doctors surgery, your school, your workplace or on social media. Link to PowerPoint (Coming soon).
- Hold a Face UP! Bake Sale and share facts about facial palsy on your display. Link to information about holding a Face UP! Bake Sale.
Face UP! to Comedy – 29 February 2020
Join us for an evening of fun and laughter to help raise funds and awareness for Facial Palsy UK. Tickets are £50 each and include a night of fantastic comedy and three-course meal. We hope you will join us and kick off Facial Palsy Awareness Week in style! Thank you to our wonderful team of volunteers organising this event. Visit the link to find out more.
Take the challenge: Lift the lid on facial palsy.
There are many misconceptions about facial palsy which unfortunately lead to inadequate health care and lack of support for those affected. How many facts can you share during the week about how our faces work and/or how facial palsy affects you? Help us encourage NHS funders and decision makers to FaceUP! to the difficulties people with facial palsy have accessing health care for a medical condition. Use the hashtags #FaceUP and #FaceTruths during Facial Palsy Awareness Week.
Posters and downloads
If you have image editing software you may want to overlay your own images with our Facial Palsy Awareness Week stamp. Download the purple one (shown left). A white one is available on request.
Facial Palsy Awareness Week History
Facial Palsy Awareness Week first launched in March 2015, at the suggestion of volunteer Kay Turner.
Watch the Ben Lomond Challenge undertaken by 120 people from Scotland for Facial Palsy Awareness Week 2016:
#FaceMyDay (2019) – We highlighted the difficulties people with facial palsy have accessing health care, the psychological impact of facial palsy and what it is like living with facial palsy. We created an animation called ‘Chloe’s Day‘
#InYourFace (2018) – We pushed the message that this condition affects function of the face and should not be dismissed as cosmetic. It’s about what is happening ‘in’ your face, which is not always what others can see. People painted numbers on their faces that represented facts about their condition and took selfies with posters explaining the number. We raised awareness in the media and published the results of a comprehensive survey about Ramsay Hunt syndrome.
#ShareMyHappy (2017) – People raised awareness of the fact that happiness isn’t always shown on your face. They also thanked those that support us during our facial palsy journeys.
#StraightFace (2016) – we highlighted what so many take for granted, the ability to laugh unreservedly and to express ourselves using our faces.
#FaceMyDay (2015) – Friends and family joined in by shaving half their beard off or wearing half-makeup during the week. They shared selfies on social media to raise awareness. The nail art community painted fingernails to raise awareness and shared on Instagram.
#FaceANewDay (2015) – people took part in dawn walks to raise raise awareness of facial palsy and literally ‘face a new day’.
Last reviewed: 13-12-2019 || Next review due: 20-12-2019