February 21, 2017
Facial Palsy Awareness Week takes place 1-7 March every year. This is your opportunity to tell people about facial palsy and how it affects your daily life. Every year we pick a theme for the week. We need your help to make Facial Palsy Awareness Week 2017 a success. Please help us raise much needed awareness about the condition and dispel any myths about it.
This year’s theme is #ShareMyHappy – because happiness isn’t always shown on your face
Thank you to everyone who took part in the survey to help us decide on the theme for this year’s Awareness Week. There was a real mix of opinions which meant there wasn’t one stand out popular theme. We have taken suggestions from the community and created a theme which is inclusive and gives people the opportunity to get involved in many different ways.
Planned social media activities for the week:
Please note we have chosen one hashtag for all themes so people can easily search all tweets/Facebook messages by searching the hashtag #ShareMyHappy. If you would like to add your own hashtags please do so.
- Personal stories – Share personal stories in written, picture or video format during the week and one positive thing that has come about from having facial palsy. Example: “I’m sharing my story for Facial Palsy Awareness Week. The theme is #ShareMyHappy because happiness isn’t always shown on your face. I was diagnosed with facial palsy six years ago after surgery to remove an acoustic neuroma [……………]. One positive thing that has come from having facial palsy is that I met others with the same thing and have made some great new friends.”
- Thanking those that support us through our life journeys – Tag a friend or family member who has supported you or your child through the facial palsy journey. There may be people you want to thank who aren’t on social media, include those too if you like! Example: “I want to #ShareMyHappy for Facial Palsy Awareness Week because happiness isn’t always shown on your face. I’m tagging [insert name/relation(s)] because when I was diagnosed with Bell’s palsy they came with me to all my doctor’s appointments. I now challenge them to tag three people who make them happy. Text HAPP17 £2 to 70070 to donate to Facial Palsy UK. Please copy and paste the whole text and just amend your story.”
- Getting the ‘happiness isn’t always shown on your face’ message out there – We will be asking people with and without facial palsy to Facebook/Tweet/Instagram photos that make them happy.
Example tweet to go with a picture: #ShareMyHappy for Facial Palsy Awareness, happiness isn’t always shown on your face. ♥My labrador Sam♥ Text HAPP17 £2 to 70070 to donate.
- Reach out and Skype, Facetime or video call another person with facial palsy during the week. Contact us if you are looking for someone to contact with facial palsy.
- Upload your pictures and comments to the Facial Palsy UK website.
- We are launching our first children’s book during Facial Palsy Awareness Week.The story is about a teddy who doesn’t have a smile who befriends a little girl with facial palsy on one side of her face.
- We are endeavouring to get stories in the press and on television and radio as well.
- Can you help raise awareness offline, for example at work and in school?
- Are you struggling to get access to NHS treatments for facial palsy? Why not write to your MP about it? We have a template you can download if you prefer.
We are looking for more case studies who are willing to share their stories in the press, magazines, on television or radio, during the week. Please download a Case Study Request form and return to us detailing the mediums you would be happy to appear in. It’s okay to send us a photo of your completed form. If you’ve already sent us a form you don’t need to do it again. We will consider everyone for opportunities that may arise. If you can send us a summary of your story as well that would be really helpful.
Alternatively, why not contact your local press and ask them to do a story on you for Facial Palsy Awareness Week?
The funds raised during awareness week make a huge difference to our work. With your help we can support more people affected by facial palsy. Fundraising ideas include:
- Bake sales (with facial palsy themed cakes)
- Sponsored challenges, e.g. walks, half-beard shave, etc.
- Quizzes (we have quiz questions available)
Contact us if you have any questions – email@example.com
Posters and Badges
There are posters and badges available to download from our website.
Thank you as always for your support. If you would like to contact us about anything in this newsletter please email firstname.lastname@example.org or call us on 0300 030 9333. Thank you again, until next time.
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