February 27, 2017
Facial Palsy Awareness Week starts on Wednesday and here’s what our community have planned!
This year’s theme is #ShareMyHappy – because happiness isn’t always shown on your face.
Planned social media activities
- Personal stories – Share personal stories in written, picture or video format during the week and one positive thing that has come about from having facial palsy. Example: “I’m sharing my story for Facial Palsy Awareness Week. The theme is #ShareMyHappy because happiness isn’t always shown on your face. I was diagnosed with facial palsy six years ago after surgery to remove an acoustic neuroma [……………]. One positive thing that has come from having facial palsy is that I met others with the same thing and have made some great new friends.”
- Thanking those that support us through our life journeys – Tag a friend or family member who has supported you or your child through the facial palsy journey. Example: “I want to #ShareMyHappy for Facial Palsy Awareness Week because happiness isn’t always shown on your face. I’m tagging [insert name/relation(s)] because when I was diagnosed with Bell’s palsy they came with me to all my doctor’s appointments. I now challenge them to tag three people who make them happy. Text HAPP17 £2 to 70070 to donate to Facial Palsy UK. Please copy and paste the whole text and just amend your story.”
- Getting the ‘happiness isn’t always shown on your face’ message out there – We will be asking people with and without facial palsy to Facebook/Tweet/Instagram photos that make them happy. Example tweet to go with a picture: #ShareMyHappy for Facial Palsy Awareness, happiness isn’t always shown on your face. ♥My labrador Sam♥ Text HAPP17 £2 to 70070 to donate.
- One Minute Brief design competition on Twitter to raise awareness, follow @OneMinuteBriefs to find out more.
- Share our infographics on social media. Amazing Face, Botox helps paralysed faces and When your blink is on the blink
- Add a Twibbon to your Facebook or Twitter profile picture (apparently the Facebook Twibbon service is down at the moment but hopefully should be corrected soon).
- Reach out and Skype, Facetime or video call another person with facial palsy during the week. Contact us if you are looking for someone to contact with facial palsy.
- Upload your pictures and/or comments to our Awareness Week gallery.
- Launch of children’s book ‘When Teddy Lost His Smile’ (due into stock 1 March). Some people are going into schools to read the book to children. If you can help get in touch.
- Facial Palsy UK has an information stand at our shared offices in Market Deeping, Peterborough, during the week. If you are local and would like to help out please get in touch.
- Write to your local MP to raise awareness about facial palsy. We have created a template you can use if you prefer. There is more information on our website here.
New stories on our website
These will be shared throughout the week on social media.
- Mandy’s story – Mandy, born with facial palsy, struggled for many years, but with the right support now knows that she can achieve anything she puts her mind to.
- Lilly’s story – Lilly has had Bell’s palsy since she was 13 years old, here she shares her story.
- Kay’s story – Kay has had Bell’s palsy twice, on different sides of her face, here she describes the impact this has had on her life.
- Sheila’s story – Sheila from Liverpool, explains how facial palsy due to cholesteatoma, an understanding surgeon and cancer changed her outlook on life.
- Roma’s story – Roma developed Ramsay Hunt syndrome about eight years ago and describes how she benefited from specialist care.
Support Group/Hospital Activities
The Cheshire & Mersey Support Group have a stand in the entrance on Whiston Hospital on Friday 3rd March.
The Norwich Support Group have a stand in the Virgin Money Lounge, Norwich on Saturday 4th March.
The team at Queen Victoria Hospital, East Grinstead, will be raising awareness on Tuesday 7th March.
The funds raised during awareness week make a huge difference to our work. With your help we can support more people affected by facial palsy. Fundraising ideas include:
- Bake sales (with facial palsy themed cakes)
- Sponsored challenges, e.g. walks, half-beard shave, etc.
- Quizzes (we have quiz questions available)
Contact us if you have any questions – email@example.com
Posters and Badges
There are posters and badges available to download from our website.
Thank you as always for your support. If you would like to contact us about anything in this newsletter please email firstname.lastname@example.org or call us on 0300 030 9333. Thank you again, until next time.