July 1, 2016
It is raining again, but we have a group of weatherproof supporters who have done some fabulous work raising awareness and funds.
This is your last chance to join Facial Palsy UK runners at the Great North Run on 11th September. Contact us by Sunday if you are interested, we have 2 places left. We will check emails over the weekend as the runner tokens expire on Monday.
Unfortunately two of our three runners had to pull out of the London marathon because of illness so Toby Fisher was the lone Facial Palsy UK vest. Thank you to all of you.
The Belfast Marathon was successfully run by Janet’s Angels – huge thanks to all of you.
Other fundraising events
A huge thank you to everyone who fundraises for Facial Palsy UK including:
- Stuart Holland who took part in the Seaton Grizzly which was a 20 mile run over all sorts of terrain and Paula for her additional fundraising.
- Jo Hobden who took part in the Marsden March.
- The Kellow family and friends who completed the Westminster Mile.
- All at Coleg Gwent hairdressing students & staff on their sponsored Transporter Bridge walk.
- Sasha and friends who took part in the Dorking Colour Run raising funds for Facial Palsy UK
- All those who took part in the Garstang gallop annual charity run which this year raised funds for Facial Palsy UK.
- Belfast and District Lawyers Football teams
- Bourne Grammar School for the non-uniform day
More fundraising coming up
Do you live anywhere near Walton on the Naze? There is what is sure to be a fantastic fundraising event taking place on 23 July from 3 – 11:30pm with BBQ, Bars, Entertainment and more. Proceeds are in aid of St Helena Hospice, Facial Palsy UK and Cancer Research. See the poster on our Facebook page for more details.
Let us know about your event.
The idea of family days is to reduce the isolation that facial palsy can cause. Children with facial palsy, siblings and parents can all meet, swap stories and support one another.
We had a great time at the Southern family day on 18th June. 9 families joined us at Terra Amata Farm for woodland walking, tractor rides, fun and games.
The Midlands family day is at Conkers tomorrow. We are excited to have 9 families booked and are hoping that we can leave our wellies in the car!
Opportunities to influence health care
The ALLIANCE in Glasgow will be holding a Neurological Conditions event on the morning of 28th July 10:00 – 12 noon, ALLIANCE offices, 349 Bath Street, Glasgow. This is for organisations and individuals with an interest in contributing to this programme. If you would like to attend or request additional information please contact Gillian Fergusson: Gillian.firstname.lastname@example.org.
NICE provides national guidance and advice to improve health and social care. They encourage public involvement from expert patients. Follow this link if you would like to find out more: https://www.nice.org.uk/about/nice-communities/public-involvement.
The national network of parent carer forums is open to anyone who is a parent or carer with a child or young person with a disability. They can influence decisions on health, education and social care. Click the link for more information.http://www.nnpcf.org.uk/who-we-are/who-are-parent-carers/
Recent stories on our website
We have added some new stories to our website this year (see below). If you would like to share your story please contact us.
Mary-Lou’s story – Mary-Lou was diagnosed with Bell’s palsy while she was at college
Shauna’s story – Shauna is 15 and has had Bell’s palsy twice
Martin’s story – Martin shares his recovery story after head trauma.
Douglas’s story – As related by his mother.
Craig’s story – Craig is very keen to raise awareness about Bell’s palsy
Poppy’s story – 17 year old Poppy shares some great advice.
Support Group Dates
Adult support groups
Newcastle – next meeting on 01 October 2016
Norwich – next meeting on 9 July 2016
Cornwall – next meeting on 23 July 2016
East Grinstead – next meeting 17 September 2016
Edinburgh – next meeting on 12 November 2016
Manchester – next meeting date to be confirmed
London – next meeting date to be confirmed
Exeter – next meeting on 3 September 2016
Midlands – next meeting on 3 September 2016
Bristol – next meeting date to be confirmed (please email us to express interest)
Thank you to all those who give up their time to run these groups and make them a success.
AGM and Grand Prize Draw
A reminder that our AGM is being held in Peterborough this year at the Great Northern Hotel on 8 October from 12 midday until 3pm. A light lunch is included for guests. We will need to have some idea of numbers by the middle of September so we’ve set up a page where you can register for your free tickets here. More information will be released shortly about who is giving presentations.
The venue is directly opposite the entrance to Peterborough train station and also easily accessible by road as Peterborough is situated on the A1.
We are currently trying to source prizes for our Grand Prize Draw. We have a couple of lovely prizes already but if you can help with additional prizes which could be used by anyone in England, Scotland or Wales please get in touch. Sadly lottery licensing laws mean we cannot sell tickets in Northern Ireland. Please also get in touch if you can help sell raffle tickets. Thank you!
Our 3-year Strategic Plan has now been updated and is available to download. We have also recently received funding to update our website so it is mobile friendly as well as funding for the development of eight Patient Information Leaflets for use by hospitals and GPs.
Thank you as always for your support. Just to give you an update about Give as you Live, we now have 104 supporters who have raised £1,115.03 between them which is amazing! Thank you! Click the banner below to find out how you can support us at no extra cost to you.
If you would like to contact us about anything in this newsletter please email@example.com or call us on 0300 030 9333. Thank you again, until next time.