Video: Patient Experiences

Alex Barker speaking at our AGM 2015

Alex Barkers speaks about discrimination he faced due to having Moebius syndrome.

July 26, 2017    ||    Video Categories: 2015  / AGMs & Launch  / Moebius syndrome  / Patient Experiences  / Speakers  / Volunteers  /

Bell’s palsy in children

A personal experience of Bell’s palsy in childhood and how new research may help.

July 26, 2017    ||    Video Categories: Facial paralysis in childhood  / Media & Film  / Patient Experiences  / Research  / Volunteers  /

Bell’s palsy in pregnancy – personal story

Selma Abbey shares her Bell’s palsy in pregnancy journey at our AGM 2016.

July 26, 2017    ||    Video Categories: 2016  / AGMs & Launch  / Patient Experiences  / Speakers  / Volunteers  /

Young flautist with facial palsy plays at AGM

Young flautist plays the flute at our AGM in 2016.

July 25, 2017    ||    Video Categories: 2016  / AGMs & Launch  / Facial paralysis in childhood  / Patient Experiences  / Speakers  / Volunteers  /

Facial palsy since birth – Mandy’s story

Mandy talks about her personal experience growing up with facial palsy at our 2016 AGM.

July 25, 2017    ||    Video Categories: 2016  / AGMs & Launch  / Facial paralysis in childhood  / Patient Experiences  / Psycho-social impact  / Speakers  / Volunteers  /

The social impact of facial palsy

A person with facial palsy explains the problems they are having to overcome due to facial palsy.

July 25, 2017    ||    Video Categories: Eating & drinking  / Media & Film  / Patient Experiences  / Psycho-social impact  / Volunteers  /

Problems eating and drinking

Someone with facial palsy explains the difficulties they have eating and drinking.

July 25, 2017    ||    Video Categories: Eating & drinking  / Media & Film  / Psycho-social impact  / Volunteers  /

How facial palsy affects self-esteem

A person describes the problems they have had with self-esteem, low confidence and anxiety.

July 25, 2017    ||    Video Categories: Media & Film  / Patient Experiences  / Psycho-social impact  / Volunteers  /

How facial palsy affects socialising

Someone with facial palsy explains how the condition has affected her socially.

July 25, 2017    ||    Video Categories: Media & Film  / Patient Experiences  / Psycho-social impact  / Volunteers  /

How does facial therapy help patients?

A person discusses the difference physiotherapy can make to someone with facial palsy.

July 25, 2017    ||    Video Categories: Facial therapy  /

What information is there for parents?

Mum Louise shares her experiences of obtaining information and support from the medical profession.

July 24, 2017    ||    Video Categories: Facial paralysis in childhood  / Media & Film  / Patient Experiences  / Volunteers  /

What information do parents need?

Mum Louise explains what would have made it easier for her as a mum of a child born with facial palsy.

July 24, 2017    ||    Video Categories: Media & Film  / Patient Experiences  / Volunteers  /