Personal Stories

Facial Palsy From Birth

Stacey’s Story

Stacey has become a confident young woman who makes sure she’s never left out of the picture.

Facial Palsy From Birth

Christine’s Story

Born with facial palsy, Christine found people in a small town couldn’t accept her.

Facial Palsy From Birth

Karen’s Story

Karen describes how lonely it felt growing up as ‘the girl that grinned’.

Lyme Disease

Janet’s Story

In June 2013 Janet’s life turned upside down on a muggy evening in Seattle.


Bethan’s Story

A car accident left Bethan with a rare form of bilateral facial paralysis.


Douglas’ Story

Douglas was left with a facial palsy after an accident in Easter 2015.


Martin’s Story

Martin’s facial palsy arrived one week after a head trauma suffered during a night out.


Richard’s Story

Aged 12, Richard woke up from a coma after an accident, to find he was partially paralysed.

Facial Palsy From Birth

Moebius Syndrome

Alex’s Story

Alex has an amazing ability to make others smile.

Neurofibromatosis Type 2

SarahA’s Story

SarahA lost her hearing and developed facial palsy more than twenty years ago.

Ramsay Hunt Syndrome

Anne’s Story

Anne describes the many months she spent searching in vain for answers and for support.

Ramsay Hunt Syndrome

Jeanette’s Story

Jeanette describes how her life was turned upside down by her diagnosis.