Personal Stories

Jess experienced facial palsy after her fifth round of surgery on her jaw

Rachel developed facial palsy after having an acoustic neuroma removed.

Emma’s Ramsay Hunt Syndrome was initially misdiagnosed as Bell’s palsy

Donna was misdiagnosed with Bell’s palsy instead of Ramsay Hunt Syndrome

Nicola has struggled to access the right care and medical treatment.

Lisa found out she had Ramsay Hunt syndrome after researching her symptoms herself.

It took 12 years for Kaye to find a specialist team to help with her facial palsy.

Jean struggled with deafness, tinnitus and vertigo after being diagnosed with RHS.

Danielle’s mum experienced a struggle to get the right diagnosis and follow-up care was lacking.

Mark faced the challenge of his life when he was diagnosed with Ramsay Hunt Syndrome.

Karen reflects on her 40-year journey with Facial Palsy caused by cholesteatoma.

The doctor that saw Spencer recognised Bell’s palsy but had no idea how to treat it.