Personal Stories


Lyme Disease

Sonia’s story

Sonia is passionate about raising awareness that Facial Palsy is not always Bell’s palsy.

Bell's Palsy

Hannah’s story

Hannah’s Bell’s palsy came on in the very late stages of pregnancy and affected her confidence.

Bell's Palsy

Helena’s story

Helena has some useful tips for others diagnosed with Bell’s palsy.

Bell's Palsy

Cathy’s story

Cathy experienced a lack of knowledge from doctors when she was affected with Bell’s palsy

Bell's Palsy

John’s story

John’s second episode of Bell’s palsy during the Covid outbreak was much worse than his first.

Amyloidosis

Paul’s story

Paul was given a rare diagnosis of Amyloidosis after spending years researching his condition.

Bell's Palsy

Anna’s story

Anna struggled to find help and had to do her own research on Bell’s palsy.

Ramsay Hunt Syndrome

Liz’s Story

Liz developed Ramsay Hunt Syndrome after returning to work from maternity leave

Post-surgical Facial Palsy

Scott’s Story

Scott developed unilateral facial palsy following surgery to remove a tumour.

Tumours & Cancers

Ali’s Story

Ali wants to change the myth that nothing can be done for facial palsy.

Tumours & Cancers

Michelle’s Story

Michelle believes there needs to be an improvement in knowledge at a local trust level.

Bell's Palsy

Michael’s Story

Michael feels there should be improved pathways of care for facial palsy.